Hi
It was lovely to see such nice articles in the Flintshire and Cheshire Chronicles. I hope you like my blog and if you want to send me any messages you can email my mummy on enquiries@claritypa.co.uk or post them on this site. It would be nice to see if you have any fundraising ideas or just want to say hi!
On Monday night my Mummy and her friends are having a meeting to talk about an auction they are planning. I think I will be in bed because it is past my bedtime (unless my teeth keep me awake again - I have 5 now and 4 of them arrived just this week!). If you have any ideas for auction items or can donate something it would be great. We have not got a date yet but hope it will be soon, maybe you will be able to come along and support it.
Love Isaac xxx
Isaac's photo
About Me
- Isaac Hughes
- I am a very happy person but because I was born with Moebius Syndrome I cannot show people when I am smiling. My face muscles are paralised which means I cannot smile or frown. Moebius is a very rare syndrome and there are only around 200 people in the Uk with it. This means there is little research into it. My Mummy and Daddy are trying to help raise money so they can fund research into this condition. For more information you can visit www.moebiusresearchtrust.org We are going to do lots of fundraising over the next 18 months and all donations would be gratefully received. Watch this space for fundraising events that are coming up. Big hugs and thanks Isaac.
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