Hi
I am very lucky to have made lots of really lovely friends because of the forum on the Moebius Research Trust. When the Doctors said I had Moebius my mummy did lots of research on the computer and found this great site http://www.moebiusresearchtrust.org/. It has a place where people with Moebius, or have children like me who have the condition, can talk to each other. Mummy says it is really good for practical information.
At the moment two men are driving across America with skirts on (Mummy says they are kilts but they Lock like skirts to me!) to tell people about Moebius and to raise more money for research. You can see how they are doing through their website on http://www.kiltsacrossamerica.co.uk/.
One of my friends can sing really well (She is 2 and a half) and her Mummy made a video of her singing Happy Birthday. Do you want to watch it? You can see it at http://s329.photobucket.com/albums/l388/dawnies07/?action=view¤t=HAPPYBIRTHDAY.flv
Take care
Isaac xx
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