Saturday, 15 November 2008

A busy month!

Hi
Sorry it has been a while since I last wrote but my Mummy has kept me very busy!

My standing frame - Because I am such a clever little boy my physio, Theresa, said I don't need this any more and so it has gone back to the hospital. Mummy and Daddy were very happy that it has gone. I still don't feel like walking but I have shown them that I can put one foot in front of another and walk a bit when Mummy holds me up. They seem quite pleased when I do this. Parents are very easily pleased sometimes!!!

My holiday - Theo did not have school for a week and so we went to Belgium to see my cousins, Tim, Sam and William. We had a lovely time and me and Theo loved seeing everyone. After a couple of days there we went to Holland to a centerparcs. It was great. We had a chalet on the river and we could watch and feed ducks from the patio. We went swimming lots and lots and my big brother went on the rapids. Mummy did not like it because she said they were a bit scary and I was too little. I loved the water because there was not much smelly stuff in it (chlorine) and so it did not hurt my eyes at all when I splashed about. I love splashing about. When I have a bath I get the whole floor really wet and my big brother sometimes says he does not want a bath with me because I keep splashing him. ha ha.

Nursery - Now I am a big boy I go to nursery one day a week. Mummy says she misses me lots but I have a great time. Last week I went all day and did lots of playing with my new friends and even painted (it tasted yummy). The girls who look after me are lovely and make sure I have a nice time.

Fundraising - Lots of people have continued to be kind and have helped raise money for the Moebius Research Trust. My brother's school have been doing some fundraising and have raised over £260 so far and a pub in Mold called the Dolphin have now raised £500. This is really kind of them and it is very exciting that so many people want to help.

Research - There are now 90 people on the database who have agreed to have their blood tested for the DNA research and Dionne at the Moebius Research Trust said that we are going to start it very soon. They still need lots of money to pay for the ongoing research but it will be very good to know it can start. There has been over £40,000 raised so far.

If you can help with the fundraising or want to know anything else about Moebius please let my Mummy know by emailing her at ceridwenhughes@hotmail.co.uk.

Big hugs
Isaac x

No comments: