Hi
It was lovely to see such nice articles in the Flintshire and Cheshire Chronicles. I hope you like my blog and if you want to send me any messages you can email my mummy on enquiries@claritypa.co.uk or post them on this site. It would be nice to see if you have any fundraising ideas or just want to say hi!
On Monday night my Mummy and her friends are having a meeting to talk about an auction they are planning. I think I will be in bed because it is past my bedtime (unless my teeth keep me awake again - I have 5 now and 4 of them arrived just this week!). If you have any ideas for auction items or can donate something it would be great. We have not got a date yet but hope it will be soon, maybe you will be able to come along and support it.
Love Isaac xxx
Friday, 28 March 2008
Tuesday, 25 March 2008
A quiet day!
Hi
It was such a busy weekend, I am having a quiet day playing trains with my brother. Even on quiet days my friends are busy raising money for the MRT. My friend Gil just rang and said a kind lady in her office (also called Gill) has baked a yummy chocolate cake and sold it around the office for £40! It must be a scrummy yummy cake.
Just over the last few days we have raised £290 - isn't that great. I am lucky to have so many kind friends who are trying to help me.
I am going to have some lunch now.
Bye for now
Isaac xx
It was such a busy weekend, I am having a quiet day playing trains with my brother. Even on quiet days my friends are busy raising money for the MRT. My friend Gil just rang and said a kind lady in her office (also called Gill) has baked a yummy chocolate cake and sold it around the office for £40! It must be a scrummy yummy cake.
Just over the last few days we have raised £290 - isn't that great. I am lucky to have so many kind friends who are trying to help me.
I am going to have some lunch now.
Bye for now
Isaac xx
Sunday, 23 March 2008
Welcome
Hi
This is my first post on this blog. My Mummy thought that after so many people kindly contacted us after the many articles that have recently appeared she would make me a blog so my friends can see what I am up to.
Me and my family have joined with other families to try to raise £250,000 to fund vital research into why I, and others, have Moebius Syndrome. There are so few people with it that no one funds any research and I would like to see why I can't smile or blink my eyes. There is no cure but who knows what could happen if the research goes ahead.
There is a nice geneticist man in Edinburgh who is all ready to start on the research but it is expensive and so we are going to try to raise lots of money. My family have personally decided to try to raise £20,000 towards the fund. If you can help can you contact my Mummy via this site please.
This weekend was a very busy weekend. On Saturday we went to a small village called Cilcain where the local Chapel held a lunch and donated all their proceeds to the Moebius Research Trust (MRT). They raise £100 which was really great. We met some lovely people and I really enjoyed my cuddles from some of the lovely ladies.
On Sunday we went to visit my Mummy's friend Gil and her family. Her daughter Amy had raised over £100 at school for the MRT. It is so kind of people to help me like this.
I am a bit grumpy at the moment because I have some more teeth coming through now. Mummy says I have nearly 3 now! They are a bit ouchy. I am going to have a bath because I like to kick around and splash lots.
Thank you for reading my blog.
Isaac x
This is my first post on this blog. My Mummy thought that after so many people kindly contacted us after the many articles that have recently appeared she would make me a blog so my friends can see what I am up to.
Me and my family have joined with other families to try to raise £250,000 to fund vital research into why I, and others, have Moebius Syndrome. There are so few people with it that no one funds any research and I would like to see why I can't smile or blink my eyes. There is no cure but who knows what could happen if the research goes ahead.
There is a nice geneticist man in Edinburgh who is all ready to start on the research but it is expensive and so we are going to try to raise lots of money. My family have personally decided to try to raise £20,000 towards the fund. If you can help can you contact my Mummy via this site please.
This weekend was a very busy weekend. On Saturday we went to a small village called Cilcain where the local Chapel held a lunch and donated all their proceeds to the Moebius Research Trust (MRT). They raise £100 which was really great. We met some lovely people and I really enjoyed my cuddles from some of the lovely ladies.
On Sunday we went to visit my Mummy's friend Gil and her family. Her daughter Amy had raised over £100 at school for the MRT. It is so kind of people to help me like this.
I am a bit grumpy at the moment because I have some more teeth coming through now. Mummy says I have nearly 3 now! They are a bit ouchy. I am going to have a bath because I like to kick around and splash lots.
Thank you for reading my blog.
Isaac x
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