Clean teeth!

Hi

Thank you to everyone for all the lovely messages after The Independent article. It was really nice to hear about you and your families. I have been very busy lately and have been having a nice time in all this hot weather. I found the sun a bit bright for my eyes but Mummy tried to help by taking me to get some special glasses fitted. I hope they will be ready soon because they looked very smart and when it is sunny they will go darker and help my eyes.

Now that I have a few teeth Mummy bought me my first tooth brush and I love cleaning them - well I really like chewing on the brush! I have also decided which is my favourite teddy. Daddy say it is a tiger. I love it and when you cuddle it's foot it snores like I do when I sleep. I love it lots and give it lots of cuddles.

Mummy has put some pictures on here for you to see. I hope you like them.

Love Isaac

xxx

A busy time

Hi again

I have been having a very busy time lately! I had my first hair cut which is great because my Mummy says I don't look like someone from the 1970's with a comb over now!!! My Mummy has also written an article for The Independent newspaper so if you would like to read more about me and my condition it is in the paper today (Tuesday).

I went to meet a plastic surgeon at Alder Hey on Friday. It was a very very hot day and so I was sick on Mummy when we were at the hospital. I was ok but Mummy smelt a bit yucky. The plastic surgeon was very nice but there is not very much he can do to help me smile. There is smile surgery if I need it when I am a lot older but that is a very very big operation and it might no make much difference as they move one muscle from your leg or chest and it can never do all the work 40 muscles usually do. I also saw the eye surgeon Mr Chandna. He says he will operate on my eyes in about a year and hopefully make my eyes a bit less winky wonky.

People are trying really hard to raise some money so that we can do some research into Moebius because no one knows why it happens. We only need another £15,000 to get the research under way. It would be so exciting to try to find out why this happens so no other Mummy and Daddy have to learn that they will never see their child smile. If you can help can you contact my Mummy please on ceridwenhughes@homail.co.uk.

I will put a picture on here soon showing my lovely new hair cut.
Big hugs
Isaac x