Hi
My very lovely friend Erin (you can see her lovely smile in the picture above)has Moebius Syndrome just like me. Our Mummies met on the Moebius Research Trust forum and they often chat and swap ideas. Erin's Mummy, Dawn, and her relatives are planning to do a sponsored walk to help raise money to fund research.
Here is what her Mummy says about the walk:-
'This charity is very dear to my heart as my beautiful 3 year old daughter Erin has Moebius Syndrome. We are doing all we can to raise the money needed to find the cause of this syndrome that robs so many children and adults of the ability to smile or indeed show any facial expression. Also they are unable to move their eyes from side to side.
It has so far proved very difficult to raise the money needed as the syndrome is so unheard of and I know of only 2 other people in Northern Ireland with this syndrome. So we are gathering together some close friends and relatives who are unbelievably unfit I might add, (lol) to do a 10mile walk to help raise funds. We intend to start off at Holywood....walk to Helens Bay and then back to Holywood again.
Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Moebius Research Trust gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation. We are also printing up sponsor sheets as well so please contact me if you would like one....
So please please sponsor me now!
"OUR SMILE IS IN OUR HEARTS"
Dawn'
To sponsor Dawn please visit her site at www.justgiving.com/dawnies
Thanks
Isaac xxx
