Eye op latest!

Hi
Sorry I have been quiet lately. Mummy had a call a couple of weeks ago to say they could operate the next day on my eyes! That was a big surprise but it was good because Mummy did not have so long to worry about me. I was asleep a lot of the time so I have told Mummy she can write on here.

The operation was really scary but we were pleased that his eye op was finally taking place. All went well with the anasthetic and intubation which was our main concern, as there have been reported complications with people who have Moebius. This part of the op was great and his anaethatist was lovely. She spent a lot of time explaining everything before the op. The op was not as it should have been however. His surgeon is wonderful but he got a little surprise when he looked at Isaac's eyes as the muscle that was over tight was already in the position he had been planning to move it to. This meant he could not do what he had planned and instead injected botox into the muscle to weaken it. This is only a short acting solution and over the next few weeks he will be monitored and the surgeon will the re-operate in 6 weeks (ish). He will use the information gathered over the new position, as his eyes move, so he can move the muscles and hopefully achieve straight eyes. Fingers crossed. So all in all we will be back to the hospital again and hopefully all will go well.

Isaac is still not walking but now he is two he is as feisty as any two year old but with the added frustration that he cannot walk yet. This is causing some problems, especially in nice weather. We want to be outside but activities are limited for those children of his age who cannot walk and then there is the problem with the sun and his inability to squint!!!! If anyone has any experiences of this and can offer a solution I would be very grateful. He refuses to wear sun glasses or hats so this is hard.

We have been putting eye drops in following his op (8 times a day in each eye) and the positives are that he has shown us he can close his eyes really tightly when he chooses.

Have a lovely Easter and we will give you some updates when we have them. Once again thank you for all your support.
Ceri & Isaac xxx